💚 Meet Mighty Myles
Myles was born on August 25, 2023, at McMaster Children’s Hospital in Hamilton, Ontario—6 lbs, 13 oz of pure magic. Like many first-time parents, we were adjusting to the whirlwind of newborn life, but something didn’t feel right.
From the beginning, Myles struggled with jaundice. Despite a dangerously high bilirubin level just three days after birth, we were sent home. As the weeks passed, the jaundice didn’t fade—and neither did our concern. At each well-baby visit, his weight stalled and his little body seemed to be working far harder than it should.
Mighty Myles’ Journey
🚨 Diagnosis
On October 11, 2023, we rushed Myles to the ER. His yellow skin and eyes, poor weight gain, and pale stool couldn’t be ignored any longer. After days of testing, on October 16, we received the diagnosis: Biliary Atresia—a rare, life-threatening liver disease. The very next day, on October 17, Myles underwent his first surgery: the Kasai Procedure.
📝 Getting Listed
In March 2024, Myles’ care was transferred to The Hospital for Sick Children (SickKids) in Toronto. After completing a transplant assessment in April, we returned home—hoping for stability.
But on May 25, 2024, Myles was readmitted due to concerning labs and a cold. That hospital admission would last 226 days, through countless tests, procedures, and ultimately, transplant.
In early June 2024, Myles was officially listed for a liver transplant. We launched a public appeal in search of a living donor. Family members—including his mom, Emily—were tested, but unfortunately, none were a match.
🌱 Today
Since discharge, Myles has been thriving.
We continue to have regular follow-ups and bloodwork, but we are stable, healthy, and doing everything we dreamed of doing—together, at home.
We call him Mighty Myles—because he’s not just surviving.
He’s beating the odds with joy, fire, and so much heart.
🏥 Life After Kasai
Watching your seven-week-old baby go into surgery is something no parent is ever ready for. But Myles showed us early on that he was a fighter. His recovery was smooth, and after two weeks in hospital—and a few readmissions—he came home.
Despite the challenges of his condition, Myles continued to grow. He worked with an occupational therapist to hit milestones and build strength. His body worked overtime just to keep going, burning through calories faster than he could take them in. But his curiosity and spirit never let him fall behind.
🏡 Life After Transplant
After his discharge, Myles continued to receive care in Toronto, with two short inpatient readmissions. The rest of the time, our family stayed at Ronald McDonald House Toronto, a place that became home while we waited for the real one.
On March 4, 2025, Myles finally came home.
✨ The Call That Changed Everything
On September 19, 2024, our prayers were answered: a donor match was found. Myles underwent a 13-hour liver transplant surgery, receiving the gift of life.
He remained inpatient until January 6, 2025—a total of 226 days in the hospital.
Thank you for your support!
The wait for a liver may be long, but we are so excited for life after transplant…
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